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Patient advocate resources

Academy advocacy & patient education resources
Patient power

Patient advocacy organizations
Canadian Skin Patient AllianceInternational Pemphigus and Pemphigoid Foundation
Cutaneous Lymphoma FoundationInternational Topical Steroid Awareness Network
Derma Care Access NetworkNational Alopecia Areata Foundation
Dermatology Nurses' AssociationNational Eczema Association
Foundation for Ichthyosis & Related Skin TypesNational Foundation for Ectodermal Dysplasias
Global Vitiligo Support CommunityNational Psoriasis Foundation
Global Parents for Eczema ResearchNevus Outreach
Gorlin Syndrome AlliancePachyonychia Congenita Project
International Alliance of Dermatology Patient OrganizationsThe Sturge-Weber Foundation
International Hyperhidrosis SocietyVitiligo Support International, Inc.
Xeroderma Pigmentosum (XP) Family Support Group

Mission statement

To advocate on behalf of the individuals with skin disease. This is accomplished by, supporting basic scientific and clinical research, fostering physician and patient education, generating awareness of the skin disease, supporting the growth of member organizations through the sharing of mutual concerns, which may increase the pace of discovery or a cure, while improving the quality of life for those affected.

Learn more
Inspiring patient stories
SkinSerious patient and physician stories
Spot Skin Cancer™ personal stories
International Topical Steroid Awareness Network
National Foundation for Ectodermal Dysplasias