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Session Information

FRM F105 - Epidermolysis Bullosa: Cases & Discussion

Open admission to eligible categories, no tuition or ticket

Subject:

Date: Monday, March 24

CME Credits: 2.00

Location: Room 603

Time: 10:00 AM - 12:00 PM

Director: Dedee F. Murrell, MD, FAAD - Handout

Speakers:
  • Anna Lee Bruckner, MD, FAAD - Handout
  • Mei Chen, PhD
  • Cristina Has, MD
  • Anne W. Lucky, MD, FAAD
  • Julio C. Salas, MD

Learning Objectives:
Following this course, the attendee should be able to:

  • Correctly perform diagnostic biopsies on EB patients
  • Outline what genetic testing and prenatal diagnosis is available for EB
  • Develop a plan for EB care in the newborn period and for adults with EB

Description:
Diagnosis in EB requires a specialized technique for inducing a fresh blister for biopsy and IF mapping at specialized labs. There will be updates on current management topics including genetic testing, management in the neonatal period, multidisciplinary management in adults with EB, and squamous cell carcinoma. How to manage the special relationship which develops over many years between EB patients, their families and their doctors will be discussed.

Schedule:

Monday, March 24
10:00 AMIntroduction / Dr. Murrell
10:05 AMDiagnostic biopsies for EB / Dr. Bruckner
10:20 AMQuestions and Answers / Dr. Bruckner
10:25 AMManaging EB in the Newborn Period / Dr. Lucky
10:40 AMQuestions and Answers / Dr. Lucky
10:45 AMGenetic testing for EB / Dr. Has
11:00 AMQuestions and Answers / Dr. Has
11:05 AMMultidisciplinary Management of EB in Adults with RDEB & JEB / Dr. Murrell
11:20 AMCollagen VII Replacement Therapy / Chen
11:35 AMQuestions and Answers / Chen
11:40 AMHow to be a Compassionate Doctor for EB Patients / Dr. Salas
11:55 AMQuestions and Answers / Dr. Salas